A great opportunity for established and new clinic leads to share best practice and network with fellow TSC experts from across the UK. Topics under discussion in 2020 include the UK Clinical Guidelines on TSC; the emergence of regional TSC Clinic Networks; and a preview of the International TSC Research Conference taking place in London in November. There will also be an exciting opportunity for TSC clinics to share their views with NHS England about how we can make NHS TSC clinics more sustainable in future in terms of multidisciplinary expertise; clinical capacity and funding.
The TSA is the only UK wide charity dedicated to supporting people affected by TSC. Our aim is to ensure that everyone affected by TSC has the care and support they need. We do this through: campaigning and raising awareness; by providing support and information to enhance the quality of life with people with TSC and our ongoing commitment to research.